THE AWKWARD MOM

because uncomfortable conversations are the ones worth having

May You Never: Memos from a Child’s Cancer Scare

Reading Time: 7 minutes

I’ve wondered for awhile how to start this post, what to write. I’m still assembling the pieces in my head like a jigsaw puzzle without the photo on the lid, and wondering if some of the pieces have fallen into the couch for good.

I’m hoping it doesn’t feel overdramatic? Guess I’ll just try to be honest with you.

The Lump

I should start from the beginning; from the night my son came down after his shower, ready to read together (Earthsea, by Ursula LeGuin, a recent Christmas gift). That honey-colored skin of his was still moist when he guided my hand to where his neck meets his shoulder. “Feel this. I think I have a weird lump.”

Should I mention the Saturday before had been the funeral for my three-year-old friend, who died of a series of brain tumors? That his mother had sat in my living room just two days before this, subdued and a little bewildered?

Calm, I thought. Don’t jump to any conclusions. I laid an imaginary hand on my voice, smoothing it out. “Hmm. That is weird.”

His eyes were searching my face, as they would for the next six weeks. The kid may have ADHD–and its natural anxiety–but when he pays attention, he has no problem with emotional intelligence. I left a message on the doctor’s switchboard, and it was returned while we read our chapter. My husband was gone for the week; I was pretty sick myself, and set my sights on surviving the week.

At the appointment, the nurse practitioner was fairly chill. “No other symptoms, right? It feels like a bone. Could be an anatomical anomaly.” We were assigned an ultrasound, and thus deposited into the sometimes-laborious cogs of the American medical system.

My son was giddy at this, and went home to Google-translate new names for his hypothetical bone into Latin.

When You Don’t Know

I hope you never, on the back of your son’s birthday guest list, have to write down words from phone call from a stranger like “complex collection of cells”  about your son’s ultrasound. Again, I was trying not to jump to conclusions. But I was also trying not to cry.

This found us, two weeks later, at a CT scan. When my son found out his dad would join us, he grew a little edgy. “This feels like it’s a big deal or something,” he said.

It is. I shrugged. “We don’t really know if it’s a big deal or not. But Dad wants to be there either way. And God’s got a plan, right?”

He Takes Away

Attempting to circumvent the previous week’s lag in obtaining results, I drove to get them from a local hospital the next morning. There were a lot of words, standing there in the sunlight, that I had to Google to make sure I got them right.

What I didn’t have to translate: Lymphoma is a primary consideration. I heard myself breathing faster, felt my heart accelerate. In the car, I repeated over and over under my breath, The Lord gives and the Lord takes away. Blessed be the name of the Lord. My voice began to hitch. I cried as I drove.

May you never have to tell your husband that your son might have cancer. And may you never, ever have to hold your 13-year-old together–after he asks too many questions to avoid, and overhears a phone call–and tell him he might have cancer.

Gifts in Darkness

But this is what I treasure about this time. Even as we wept together, that boy started talking about what he was thankful for. He said things like, “God has a good plan for this. And even if I die, I get to be with Jesus, right?!”

Right, Son. Sometimes I think your faith outpaces mine. (I remembered later that he was the one who, immediately after our family was robbed, asked if we could pray.)

The next morning, as we prepared to go for bloodwork, he restated again that he wasn’t that worried. He was more worried, he told me, that I couldn’t stop crying, which made him nervous. “Mom!” he insisted. “I have complete faith that God has a good plan for this. God had a plan for Henry (our recently-passed toddler friend). And God has a plan for me. I mean, he’s not the kind of God who goes around giving people tumors for fun.”

(I am having a hard time not crying as I type right now.)

May you never have to talk as a family about one of you possibly having cancer. But if you do, I hope you get to hold each other and pray, even as you cry all over the place.

My son continued to ask questions about what chemotherapy is like. If he could have surgery and get a “cool scar.” If he could still go to summer camp (“We’ll see. But hold things loosely”). If he could play football next year (“I really don’t know. I’m sorry”).  How many times did I have to answer “I just don’t know”? He inspired us to compile a neon-yellow index card–a “thankfulness list”–in the binder we’d purchased for medical notes.

Of all I have absorbed through all of this, I see God’s kindness in giving my son the faith of a lion.

Next Steps. Even When You Hate Them

I was mentally, emotionally, spiritually all over the place. Fear and gratitude and anger and grief and faith and bewilderment sprinted through me in cycles and in packs. In the morning, after the kids went to school, I would stare out the window in silence.

I asked God that if there were chemo or radiation involved, he would let my son still have children–because he wants five or six. I asked God that he would preserve my son’s sense of smell and taste, because he wants to be a chef. (I admit to rewarding blood test bravery with letting the kid pick something out to cook. Shrimp, he decided.)

My husband and I begged God that this would be nothing…yet over and over, found ourselves asking, and even truly wanting, God to do what he saw fit. My husband remembered aloud about a colleague of his whose joy and peace in her cancer was itself sheer beauty. And we were already amazed at what God was doing in all of us in the fear and waiting.

I say this not because we are a hero family of any sort. If anything, my husband and I went to buy eyedrops together because we had been crying so much.

You guys. I was a mess. And so exhausted. There was another benefit of sleep, I found: I could finally not think and think and think. I could forget.

May you never need a referral to a pediatric oncologist. But if you do–may the oncologist be as astute as ours. There were multiple blood tests, another CT scan, this time requiring my son to down two bottles of oral contrast, which he ended up hating more than needles (the latter of which he had to quickly conquer). There was a consultation with a surgeon, when we thought we would want to remove the offending lymph node and biopsy it, hopefully with very boring results to match the totally healthy bloodwork.

The Ram

Lest I bore you, I will cut to a call last Thursday, where I stood in my bedroom. Your son is 100% cancer-free. I was bewildered. Exultant. I felt like the woman with her lost coin, who called all her friends when she found it (Luke 15:8-9).

cancer drinking contrast

My son would want me to tell you that he was right all along, after five weeks of tests (“and that horrible contrast! Mom!”): He has an extra bone, a cervical rib, which can only be found in .2% of the population. My husband has suggested we name it “Eve” (a little biblical humor there for you). And something thought to be a lymph node was a muscle; another swelling was a normal thymus gland. (Did you even know you had a thymus gland?)

The day we went for the CT and oncologist consultation, I felt like Abraham going up the mountain. Lord, he is yours. But why this? I kept waiting for a rustle in the bushes, for some sort of a ram that, like I wrote to you, I knew I wasn’t entitled to receive. I wrote in my red journal as we sat in the waiting room and my son complained about drinking oral contrast: Our God whom we serve is able to deliver us from the burning fiery furnace, and he will deliver us out of your hand, O king. But if not, be it known to you, O king, that we will not serve your gods. (Daniel 3:17-18)

 

A Difficult Mercy

A week later, I still feel as though I’ve just gotten out of jail. I muse over the fact that God knit this rib to my son when he made my son, knowing this would be discovered in 2019.

He humbled you and let you hunger and fed you with manna…that he might make you know that man does not live by bread alone, but man lives by every word that comes from the mouth of the LORD. (Deuteronomy 8:3)

A cousin of mine wrote recently that sometimes God’s mercy is revealed in the most unexpected ways: Getting written up at work. Someone confronting you. Being disciplined as children.

As my husband and I mulled over all that’s transpired, I have to say that this, too, has been a difficult, painful, gut-wrenching mercy.

But it’s a mercy just the same.

It’s as if my son’s faith has been forced into blossom; as if our family may have received the gift of fear so we’d be driven to faith. Reminded of hope. Solidified in endurance and character.

I’d never wish this on anyone. But I can’t say I would have missed this.

I am no Abraham. Yet I wonder about his emotions and questions as he walked up a mountain; the expression as he searched for stones and built an altar with his hands. I wonder how he changed after those three days in his life, the snippet of horror. The abject relief.

God’s why’s are far too complex for my three-pound brain. (No doubt my reflections will be tumbling across this site for weeks.) But for right now? I’ll revel in the sheer gift of a child who has no cancer.

Like this post? You might like

 

5 Comments

  1. Wow friend. I am so thankful for the outcome of your story. I never had to go through that with my kids but your story gave me some insight into what my parents went through with me when I was a child. I was having abdominal pain and during the exam a huge lump was discovered. It was many tests later that it turned out to be my kidney, just misplaced. I am sure it was pretty scary for my parents. I don’t remember too much.

    • Wow, Beth…you are right, I feel a lot of compassion for your parents! I had no idea that was part of your story. So thankful for a faithful God who crafts our bodies so perfectly for our stories!! And thankful it’s just a “remember when…” now!

  2. Teresa Clayton

    April 9, 2019 at 1:43 pm

    Thank you for sharing this Janel. Just your raw, motherly emotions – fear, love, faith – all mixed up like a casserole. I love the humanity of it – none of us are above this “mess”. The scripture about why we suffer is so that we can know how to comfort others (2 Cor 1:4) came to mind. I’m rejoicing that Will is ok. I love your family.

    • Teresa, thank you so much for rejoicing with us, and for such warm words in (yes!) a mashup of some of my most frightening emotions and experiences ever. Grateful for your compassion!

  3. Just five months ago, my oldest had just been sent home from college for treatment because he was suicidal, when my 16-year-old came home from school saying his abdomen hurt. He ended up in the pediatric cancer unit at the hospital that week with a baseball-sized mass between his kidney and his spine. While we were there I got a call back on a test the cardiologist had done on my 4-year-old son letting me know that they had found that he has Supra ventricular tachycardia. A nurse walked into my son’s hospital room and mistakenly said, “so, you were just diagnosed with lymphoma?” At one point, I felt like I could hear satan saying “I’m going to take all three of your sons.”
    After all the tests and procedures, two surgeries, a blood infection, and 23 days in the PICU and the pediatric ward, the benign ganglioneuroma is gone, and my middle son has a big, cool scar which he says will give credibility to his combat stories he likes to tell his friends at school about his scar on his scalp that he’s had from birth.
    Through it all, my son showed strength, resolution, and patience as well as his faith in God. I’m so thankful you wrote about your experience because it’s so similar to mine. I’m so thankful God protected both of our sons! He is faithful no matter what. ☺️

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.

© 2024 THE AWKWARD MOM

Theme by Anders NorenUp ↑

Show Buttons
Hide Buttons